join the registry
Thank you for your interest in participating in the MCDS Patient Registry. Your contribution is essential to improve knowledge on how MCDS may affect quality of life, and to advancing research and improving patient care for individuals affected by Metaphyseal chondrodysplasia, Schmid type (MCDS).
Before registering with the MCDS Patient Registry, ensure that you meet the eligibility criteria. The registry is open to individuals with a genetic or clinical diagnosis of Metaphyseal chondrodysplasia, Schmid type, or their parents or legal guardians (for minors).
To join the registry, click on the “Register Now” button above. You will be directed to a secure registration form where you can provide essential details, such as your name, contact information, date of birth (or the patient’s date of birth if registering on behalf of a minor), and relevant medical information.
Upon completing the registration form, you will be asked to provide informed consent for participating in the registry. This consent ensures that you understand the purpose of the registry, how your data will be used, and your rights as a participant.
After providing consent, you will have the option to contribute various data types to the registry. These include medical history, diagnostic reports, treatment information, and any relevant updates on your or your child’s condition. All data collected will be securely stored to protect your privacy.
Help us make a more significant impact by spreading awareness about the MCDS Patient Registry. Share our website and social media links with your network, including family members, caregivers, and healthcare providers, to encourage others to join this vital effort.